Lawson

Why we requested this gift

Throughout my twin pregnancy, we saw a high-risk ob-gyn, because there were two babies, at every appointment, both babies were checked and at every appointment, they never found any issues. The twins were born 6 weeks early and sent to a bigger, more capable hospital. Watson needed time to develop his lungs and was discharged in about 4 weeks time. Lawson had a much harder time. A few hours after birth we were shocked to learn that Lawson was diagnosed with Taussin-Bing. Taussin-bing  is a cyanotic congenital heart defect where he has both double outlet right ventricle (DORV) and subpulmonic ventricular septal defect (VSD). He also had transversal of his pulmonary valve and aorta. He went on total life support, had multiple blood transfusions, a shunt placed in his heart, and total life support called ECMO all before turning 2 months old. He was released from the hospital at 4 months old, on continuous oxygen, an NG feeding tube, and multiple medications. When he was 10 months old we went back to the hospital for another 6 weeks when he had major open-heart surgery,  a permanent feeding tube placed in his stomach, and another minor surgery. This allowed him to slowly wean off oxygen. He is completely free of oxygen support now! He is developmentally delayed and still fed 100% fed by tube, but the important thing is that he is here with us. Lawson loves playing with his twin and is crazy about his older brother too! Lawson, Watson (twin) and Ellison (4 years old) all love to be outside! I’m requesting a play area/swing set. I believe that more outside time and something to play with will help Lawson to essentially catch up to his twin and overcome his developmental delays quicker. All 3 boys would love to have something like this to play with outside in our back yard. This would make playtime a bit easier as the 3 of them would all have something to do and play with. This would allow Lawson the means to play on the equipment with supervision and would be the boost he needs to help him gain more strength and stability. All 3 of my kids would play on this for years to come.