Jakob
$898.85
| Type of Gift | Therapy Equipment |
|---|---|
| Diagnosis | Cerebral palsy, Seizures, Cortical vision impairment, Periventricular Lukomalaysa |
| Siblings | 2 |
| Gift Requested | Special Tomato Recliner Support System and Versa Form Pillow |
| Price of Gift | $898.85 |
Why we requested this gift
As Jakob has gotten older of course he has gotten longer and stiffer. We are asking for the Special Tomato recliner system to give him an alternate, comfortable place for him to “chill”. He currently has an “activity chair” that we use for feeding, etc but it isn’t comfortable or relaxing. He is unable to sit up straight so just putting him on the couch is out. We do put him in a recliner but he ends up sliding over and we have to constantly pull him up. The Special Tomato Recliner System is designed to provide the ability to sit straighter but with comfort. It can be used for a lot of things. We have tried several times over the years to raise money for it but have been unsuccessful. I have attached both the website link and the link for the items we would need. It is a lot of money, so if it isn’t possible we totally understand.
As I had mentioned he has no trunk control and is constantly leaning to his right. In his wheelchair, activity chair, recliner, and my husband’s truck we are continually trying to keep him upright. We have stuffed pillows, funoodles, towels, blankets, everything and anything to help him stay up right. He even had a back brace before he had a baclofen pump put in and it didn’t help. We currently have a neck brace that helps somewhat. We started him back on therapy because his legs were getting stiff and the new therapist told us about the Versa form pillow. She said it would work for help to provide a formed shape for him to sit in. It can be shaped and reshaped depending on which chair he is sitting in. We thought this would be great for his daddy’s truck too.
Our story
My name is Deana. Travis and I are the proud parents of Jakob. He is my youngest son, I have an older son named Trey. Jakob is a pistol fireball. He loves Elvis, Michael Jackson and all types of music. He was born at 29 wks and ended up with Cerebral Palsy, Seizures, Cortical Vision Impairment and Periventricular Lukomalasia. Despite all this, he is full of life and loves everyone. He is into venturing and loves being a chair assisted runner having competed in a marathon, half-marathons along with 10ks and 5ks. He likes bowling, fishing and just hanging out at home. My older son Trey is Jakob’s caregiver, so they have a special bond. My husband Travis and I try to give Jake a “normal” life as much as possible. When he was younger and smaller we would carry him around in a backpack carrier so he could venture more places. As he has gotten older we have to use his wheelchair. As you know most places are not accessible so we have to limit our exploring. If it is possible to do it with him, we give it a try. He is definitely our world and we love it.
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