McKinley was prenatally diagnosed with a Congenital Heart Defect. It was not until she was born on February 19, 2018 that we learned the specifics are her defects. McKinley has 5 CHDs: Double Inlet Left Ventricle, Double Outlet Left Ventricle, Transposition of Great Arteries, Atrial Septum Defect, and Pulmonary Stenosis. When McKinley was about a week old we also learned that she has a deletion on Chromosome 16q. McKinley spent many weeks in the hospital as a newborn, underwent a heart procedure called an atrial septostomy, and also suffered a stroke at 3 weeks old. McKinley came home with a feeding tube and the goal of getting bigger and stronger for her open heart surgery. She spent several months in heart failure and in September of 2018 McKinley had the Glenn open-heart surgery. McKinley’s heart had a very difficult time recovering, but after about a month McKinley was released with oxygen and a feeding tube to come home to continue her recovery. Since then, McKinley has made so much progress! She started eating/drinking and no longer requires the feeding tube. She was also able to come off of oxygen. While we wait for McKinley’s next open heart surgery within the next couple of years, we focus on helping McKinley catch up on milestones. McKinley has hypotonia – low muscle tone. This has made it challenging for her to walk, run, jump, and climb. With the help of a great physical therapist and leg braces, McKinley started walking.
Gifting: Thanks again to Kevin with Top Dog Golf Carts out of Cumming, GA for pouring so much into this project and making it everything the family needed! We were thrilled to have him gift this family with us!