Lavell’s Family

Lavell is an 8-year-old boy diagnosed with Prader-Willi syndrome when he was 2 months old. At the beginning he was a poor feeder with low muscle tone. He was sent home from the NICU with a feeding tube; now he has the opposite difficulties. He has an uncontrollable hunger that we struggle with on a daily basis with behavior issues caused by the hunger. He then got diagnosed with infantile scoliosis when he was 6 months old. He’s had multiple back surgeries, which happen every 6 months until he turns 15. Life has been a rollercoaster to say the least! But even though he’s gone through so many procedures he’s still such a lovable, sweet boy. And even though it feels like we live at the hospital sometimes, he never gets tired of seeing the doctors! In fact, he loves going to the doctor and hospital. He has overcome so much, and I am so proud to say that’s my baby! 

We are requesting a specialty bike or something he can ride outdoors that will also help with exercise because of his condition, to help him lose weight but at the same time will make him feel like he can fit in with other kids, because he can’t do most things the other kids can when playing outside.

Gift: Basketball goal, rental car (donated by Automax of Rome, Georgia) for a family trip up North at Thanksgiving, gas gift card, and an adaptive tricycle (ASR2011 Semi-Recumbent Trike) by Freedom Concepts

Location: Whitfield County

Given: July 2022

A portion of Lavell’s gifting includes a rental car donated by our wonderful friends at Automax in Rome, Georgia.  Lavell and his family will be visiting family up north at Thanksgiving.  We are so thankful to Blake and Automax for everything they do to help our SGF Families!